Awesome Video Montage For Sarah’s Birthday Reminds Her To Smile
I’m a firm believer that homemade gifts are the BEST gifts!! My 13-year-old daughter has been working for weeks on this special gift of memories for my birthday. So many happy times. Definitely gives me the second wind I needed to fight and conquer chiari for another year.
One thing I’ve learned over the past couple of years, every happy moment I experience comes with a huge cost! I keep the ugly side of chiari out of the public eye, but today I feel the need to share just a little bit of it.
Good chiari days are far and few between. I know I’ve had surgery and many are under the impression that I am doing ‘well’ or am ‘cured’. I am doing well, compared to others with chiari whose disease is more progressed. I’m not cured. Each day is a struggle. Everything hurts. From the top of my head, back of my eyes, teeth, spine, joints, skin…did I forget anything? It takes deep concentration and meditation to get through one day. Usually, by the time I get home in the afternoon, I’m exhausted from fighting so hard. I sleep. I sleep a lot!
But, I may have chiari…chiari doesn’t have me!! I still get up every morning. I still give it a good fight. I embrace new days. I welcome birthdays. I will push myself to go to an event, knowing the physical price I will have to pay. But it is those special moments…those happy times…that get me through the bad times. When I feel like all hope is lost and I just…can’t…continue…the…fight, I have videos like this to remind me just how precious life is!
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Life is precious. Nothing is guaranteed. No matter what your struggle is…don’t let it become who you are.