It's amazing how you've never heard of a disease, like Chiari Malformation, and then suddenly two members of our community are battling it. Kind of like buying a car....you've never seen one then it appears everyone has one. As I write this, I can't believe it was 12 days ago that I underwent a 10 1/2 hour procedure to conquer my own battle with chiari.
Recovery is long, but I'm doing really good. My energy has returned. My pressure headaches are gone. Only 'bad' things I'm dealing with are: numb tongue, numb right thumb, hiccups whenever I eat or drink & very painful hips (associated with EDS).