Anybody who is anybody has seen some sort of LulaRoe group on Facebook.  They are just popping up all over the place.  If you have been tempted to try this extremely comfortable line of clothing, consider joining this fundraiser...from the comfort of your own home.The online Fundraiser will take place LIVE on Facebook, this Sunday (August 14th) at 8pm.  To participate in the event, just JOIN the Erika's LulaRoe Group by clicking here.  On Sunday, just watch the LIVE video from home.  A portion of the sales will be donated to my kids having to travel back and forth from NYC for treatment for their chiari.  The rest will go to Erika, the consultant, who is Connor's mom.  Connor is my Chiari Buddy.  So either way, you are supporting a family struggling with chiari malformation and its 'lovely friends'.

To be part of the fundraiser, remember to JOIN THE GROUP BY CLICKING HERE

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Also, You can help both Erika & me Conquer Chiari (where proceeds go to finding a cure) at our Shop to Conquer Chiari event coming up August 27th.  Or, join the Conquer Chiari Walk Across America walk on September 17th!  Register by August 15th to be able to get a tshirt.  The is FREE!  A minimum donation of $25 gets you an exclusive Conquer Chiari - Central Maine Tshirt.

Here are some cool pictures of my Chiari journey:

And not even 8 hours after a 10 1/2 hour surgery, I had to call McCoy:

Chiari is a BEAST!  I wouldn't wish it on my worst enemy.  But to know that my kids have it, I will fight and fight until there is a CURE!!

 

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