Wow...do you have any idea how strange it feels to have a condition that has been a topic of discussion on a mystery TV show?  While, my case wasn't as severe as the girl in the show...I did go through being misdiagnosed several times.  Chiari Malformation has recently been taken off of the rare disease list.  Making the public, as well as the medical community, aware of this condition will hopefully spare people in the future from a lot of pain and suffering.

Here is the show:

Without the help of Dr. Bolognese, I wouldn't be where I am today.  I owe him my life.

Don't forget to join me at the Conquer Chiari Walk Across America at Quarry Road Recreation in Waterville on September 17th.

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